Thursday, March 8, 2012
no improvement
i have a bad attitude. i know i do. i can't help it. i'm really scared that random people will read this blog and post hate messages for me. i don't know why i give a rat's a*ss what people think. so anyways, we're in the process of getting OT. in ny, you don't qualify for EI therapy unless you show signs. it doesn't go by diagnosis alone so it's kind of annoying. on one hand, i want him to show signs because i want as much therapy as possible. but really, i'd rather him be on track and not show sh!t except normalcy. so the OT stopped by a couple weeks ago and she did the evaluation. she was kind of a disgruntled unfriendly person. whatever. i received the papers in the mail yesterday. it was kind of a reality check. i mean, i knew he was behind but not THAT behind. his fine motor skills - they're on the level of a 1 month old. he's 5 months and 1 week old. i mean, i'd get it if he were on a 3 month level. after all, he was 4.5 weeks premature (although honestly, i have high, sort of unrealistic, expectations for him so i don't like to adjust his age). but one month old - what a f*cking blow. i went nuts. my husband wants to strangle me. i can't handle sh!t. i'm a mess. i contradict myself so much too. i don't make any sense to myself. it's like, i'm totally doom 'n gloom and think the worst case scenarios will happen. but then when i read that his fine motor's at a 1 month old level, i can't accept it. i flip out. i think what it is - i'm naturally a negative, anxious, pessimistic person BUT deep down inside, i think i DO have hope/faith. i just don't admit it because i don't want to jinx anything. so when sh!t really does go badly, i lose it because i give off a doom 'n gloom front, but deep down inside, i think things will be ok. but now i really wonder if things will be ok. i'm depressed. woe is me...as usual.
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Hi, This is Noah's dad from Noah's Ordeal.
ReplyDeleteI remember the day that Noah got his first evaluation. It was a tough one for sure. Watching the people evaluate him and just their body language and glances towards eachother when Noah wouldnt do something right. it KILLS you inside to see your child struggle.
You mentioned that you said i was mature and all that on my blog. That i am more optimistic than you...well...on the outside i am. But from the moment we were told that Noah had suffered brain damage a part of me just died. I try to give off this happy optimistic glow. But deep down i feel every thought that you are writing about. The optimist in me died that day...but it awakened another part of me i didnt know was there. The part that said
"i can hope and wish and pray that things will get better, or i can do something about it. And so far my hopes haven't done S*** for me...so i will do all i can myself, F*** optimism...i'll make my own luck"
I just want you to know that you're not the only one that feels the way you do. We all just show it a little differently is all.
I wish the best to you and your little guy in the future. I hope you can find a way to deal with all the stresses of your situation. Whenever I am down about everything I just stop and think "being sad/angry won't do Noah any good...so get the f-up and do something for him!"
I'm not trying to tell you how to live your life or anything like that...just letting you know how i TRY to deal with the feelings you described.
-Ryan-